By Alper, Joe; Feit, Monica N.; Sanders, Jon Q.
In 2011, the Institute of drugs (IOM) published the record The healthiness of Lesbian, homosexual, Bisexual, and Transgender humans: development a starting place for larger knowing, the 1st complete compilation of what's identified concerning the well-being of every of those teams at diverse phases of lifestyles. This file additionally defined an time table for the study and information assortment essential to shape a fuller knowing of this topic. one of many thoughts during this document was once that, only if privateness matters will be thoroughly addressed, info on sufferers' sexual orientation and gender id can be amassed in digital healthiness documents, simply as details on race and ethnicity is in many instances accumulated. Such information are crucial simply because demographics give you the origin for figuring out any population's prestige and wishes. this advice well-known that the prospective pain at the a part of healthiness care staff asking questions on sexual orientation and gender id, a scarcity of data by way of companies approximately tips to elicit this data, and a few hesitancy at the a part of sufferers to reveal this knowledge could be obstacles to the gathering of significant information on sexual orientation and gender identity. Read more...
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Extra info for Collecting sexual orientation and gender identity data in electronic health records : workshop summary
George Brown of the Department of Veterans Affairs asked how intersex people are supposed to identify themselves when the sex-at-birth question offers just male or female options. Snowdon replied that these choices are dictated by insurance company systems that only accept male or female. In that respect, that field only reflects the legal identification or insurance record of the patient. Intersex status is collected in the gender identity drop-down list. Barbara Warren, director for LGBT Health Services at Continuum Health Partners in New York, relayed her experiences in working with the New York State Office of Mental Health to add questions on sexual orientation and gender identity to the standard patient admissions form.
For transgender patients, the data collected during the test phase suggest that there are several groups of transgender persons. There were those who identify with their affirmed gender and do not identify as being transgender as well as those who do identify as being transgender. There were also those who identify along a non-binary spectrum, or as genderqueer—neither male nor female. So far, Fenway Health has been able to capture structured data on 11-12 percent of all of its patients. Since the addition of the sexual orientation question in December 2011, roughly one-third of all patients have answered it.
EXISTING DATA COLLECTION PRACTICES 31 BOX 4-1 Recommendations from Kaiser’s Study Group for Sexual Orientation and Gender Identity Questions The Kaiser study group recommended the collection of self-identified data at the Patient level, and recorded in Kaiser’s EHR system: 1. Sexual Orientation • How do you identify yourself sexually? 2. Gender Identity • What gender (sex) do you consider yourself? • What gender was recorded on your original birth certificate? 3. Sexual Behavior • In the last 24 months, with whom have you had sex?
Collecting sexual orientation and gender identity data in electronic health records : workshop summary by Alper, Joe; Feit, Monica N.; Sanders, Jon Q.